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parinticlujeni.ro • Vezi subiect - neutropenie
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neutropenie

MesajScris: Sâm Oct 13, 2007 11:29 pm
de romena
buna, sunt inscrisa de ceva vreme pe acest site, dar nu am intrat decat acum pe forum si as dori sa intreb mamicile daca stiu ceva de boala numita neutropenie cronica benigna, diagnostic pus fetitei mele de 1.8 luni, in urma cu 4 luni. Stiu ca este o boala relativ rara. Va rog, daca sunteti in situatia noastra sau cunoasteti manifestarile in timp ale bolii sau tratamente sa ne ajutati cu informatii. Va multumes din suflet
Romana

Re:neutropenie

MesajScris: Mar Oct 16, 2007 10:48 pm
de danasalo
Cum de i s-a pus acest diagnostic, a avut ceva simtome?
Scuze ca te intreb dar dupa cum am citit ar trebui sa fie ori dobandita ori ereditare- ori dobandita nu prea ai cum...ca e prea mica.

Inca o data scuze de intrebari.

Nu stiu prea multe, dar stiu ca in Cluj la Pedi 2- pe Crisan- sunt DR super buni in frunte cu MIU si te pot face bine.

PUsi

Re:neutropenie

MesajScris: Mie Oct 17, 2007 12:10 am
de romena
Multumesc pentru gandurile bune . Boala este genetica, o are si taticul doar ca intr-o faza mai usoara. Suntem luati in evidenta la Pedi2 la sectia de oncologie, insa medicii nu spun foarte multe, doar ca rebuie sa refacem periodic analizele(2-3luni). Nu a avut manifestari grave, in sensul infectiilor puternice, am descoperit boala intamplator. Nu-mi dau seama cum as putea preveni infectiile cata vreme medicii nu ne dau nici un fel de tratament. Am deschis dicutia despre neutropenie in speranta ca cineva stie mai multe despre boala. Pe site-urile din strainatate, pe forumuri se discuta destul de mult despre boala, dar as prefera sa cunosc un caz la noi, desi nu doresc nimanui sa se confrunte cu asa ceva.

pupici si multumesc :)

Re:neutropenie

MesajScris: Mie Oct 17, 2007 1:23 pm
de mihamatei
nu stiu nimic despre boala si nu stiu nici un caz. dar o sa ma interesez, ca am vreo 2 prietene care sunt medici si le intreb pe ele, sa vad daca nu stiu ele vreun caz, o sa incerc sa te tin la curent. :kiss: :kiss: :kiss: si multa sanatate la fetita!